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    • #8923

      Hi- wondering if any moms heard/know of Muckle-Wells Syndrome?

    • #8952

      Here is some information I read about it! I have added a link down below as well. I hope this helps
      Muckle-Wells syndrome
      Muckle-Wells syndrome is a disorder characterized by periodic episodes of skin rash, fever, and joint pain. Progressive hearing loss and kidney damage also occur in this disorder.

      People with Muckle-Wells syndrome have recurrent “flare-ups” that begin during infancy or early childhood. These episodes may appear to arise spontaneously or be triggered by cold, heat, fatigue, or other stresses. Affected individuals typically develop a non-itchy rash, mild to moderate fever, painful and swollen joints, and in some cases redness in the whites of the eyes (conjunctivitis).

      Hearing loss caused by progressive nerve damage (sensorineural deafness) typically becomes apparent during the teenage years. Abnormal deposits of a protein called amyloid (amyloidosis) cause progressive kidney damage in about one-third of people with Muckle-Wells syndrome; these deposits may also damage other organs. In addition, pigmented skin lesions may occur in affected individual.

    • #20193

      Howdo you tolerate this?

    • #21632

      never heard of it

    • #49728


    • #49731


    • #52265

      Thank u

    • #52475

      How is this condition treated?

    • #52904

      How is it

    • #53632

      never heard of it

    • #65883

      Good read.

    • #79885


    • #83105

      Helpful information.

    • #228281

      Nice one

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